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Congress: Improve access to home-based care!

Navigating long wait lists. Financial barriers. Lack of personal care attendants. Those are just a few of the many issues people who have a neuromuscular disease face when trying to access home-based care. And it’s why it’s vital Congress invests in the following bills which will improve access to these vital services.

1. Ongoing Reconciliation Economic Recovery Legislation - This substantial investment in helping states explore better ways to provide home health care will:

  • Reduce harmful barriers to accessing vital services
  • Increase the home-based care workforce
  • Help people find home care workers
  • Allow people to hire a family member or someone with an existing relationship to provide services

2. Supporting Our Direct Care Workforce and Family Caregivers Act (S.2344)

  • This bill will invest in programs that will help recruit, train, and retain home health care workers.

3. HCBS Access Act - When introduced, this bill will:

  • Make Medicaid coverage of HCBS mandatory. This would result in shortened wait lists.
  • Increase home-based care workers’ wages
  • Help people navigate the often-confusing home-based care system of services

Urge your members of Congress to support this legislation today! 

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