Logo

Action Center

Thank You for Your Advocacy on behalf of the Myotonic Dystrophy Community.

To everyone who took action, raised their voice, and stood with the myotonic dystrophy community—thank you. Your dedication to protecting DM research funding means everything, and while the Continuing Resolution vote did not bring the outcome we hoped for, this is not the end of our fight.

We remain committed to ensuring timely access to safe, effective, and affordable treatments and cures for myotonic dystrophy. Advocacy is a long road, and together we will continue pushing forward to make sure DM research and care remain a priority.

What’s Next?
There are still many ways to make an impact! Join us in ongoing advocacy efforts to support DM research, patient care, and policy initiatives that matter to our community.

Your voice matters. Your efforts matter. Together, we will keep moving forward to treatments and a cure.