Action Center

New York State support for Spina Bifida services statewide!
The Spina Bifida Association of New York State (SBANYS) is the sole affiliate chapter of the National SBA in our state committed to providing services to individuals living with Spina Bifida, their families, and their professional network. Our services are free, available across the lifespan, across NYS, and have no eligibility requirements based on income, adaptive skills, or insurance. 

We need New York State support to achieve our goal of effectively serving the estimated 4,000 individuals living with Spina Bifida in New York State. New York State funds help us provide case management, systems navigation, community and education outreach, peer support, advocacy, and programs benefitting our community. 

With continued stable funding, in addition to our current services, SBANYS is developing programs based on the most pressing needs of the community, including greater awareness of Spina Bifida and our agency services statewide, self-advocacy skills training, direct service provider education, and creating programs to tackle the hidden challenges of Spina Bifida including mental health, medical trauma, and executive dysfunction.

We need your advocacy to let NYS know that people with Spina Bifida matter! We are requesting NYS keep SBANYS in the budget in 2023 at $100,000 to provide programs and services that positively impact individuals, families, and providers impacted by Spina Bifida and expand our reach and impact across NYS. Please take action and share as we continue to pursue our mission to build a better and brighter future for all those impacted by Spina Bifida!

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