Action Center

New York State support for Spina Bifida services statewide!
Urgent: Our funding was slashed in half in 2023, leaving a void in Spina Bifida care. We seek $125,000 from New York State to bridge gaps and enhance vital services. Beyond current offerings, SBANYS aims to raise awareness, provide education, and address hidden challenges. Your advocacy is crucial! Join us in urging NYS to allocate $125,000 in the 2024 budget for impactful programs and services, ensuring a brighter future for those affected by Spina Bifida. Act now and share our plea! #SBANYS2024

The Spina Bifida Association of New York State (SBANYS) is the sole affiliate chapter of the National SBA in our state committed to providing services to individuals living with Spina Bifida, their families, and their professional network. Our services are free, available across the lifespan, across NYS, and have no eligibility requirements based on income, adaptive skills, or insurance. 


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