Overview
Sjögren’s is a complex, systemic autoimmune disease that affects an estimated 4 million Americans. Yet despite its prevalence and significant impact, Sjögren’s remains underrecognized and often misunderstood.

For people living with Sjögren’s, the challenges are real. From delays in diagnosis and finding knowledgeable healthcare providers to managing unpredictable symptoms, fatigue, pain, and the impact on everyday life, Sjögren’s can affect nearly every aspect of a person's health and well-being.

Living with Sjögren’s often means managing a complex disease over a lifetime and receiving care from multiple healthcare providers. But numbers and clinical descriptions tell only part of the story. Lawmakers also need to hear directly from the people they represent about what Sjögren’s means in everyday life.

When lawmakers understand the challenges their constituents face, from getting a diagnosis and managing symptoms to accessing appropriate care, they are better informed when making decisions that affect research, healthcare, and the Sjögren’s community.

That is where your voice can make a difference.

Take Action!
Contact your lawmakers and help educate them about Sjögren’s. We have provided information about the disease to help get you started, but the most important part of the message is yours.

Personalize your message by telling your lawmakers about your experience with Sjögren’s. You might share:

• What your journey to diagnosis was like
• How Sjögren’s affects your health, work, family, or daily life
• Challenges you have experienced getting appropriate care or treatment
• What you wish policymakers better understood about living with Sjögren’s

By sharing your story, you can put a constituent’s experience behind the facts and help ensure Sjögren’s is understood by the people making decisions that affect our community.