Because of this program, NIH was able to develop the Kids First Data Resource Center, a large-scale shared data resource to help researchers better understand the biology and genetic pathways of pediatric diseases like rare cancers. The 2.0 version of that legislation will enable this collaborative foundational research to continue for five more years.
This legislation was re-introduced for the 118th Congress in May 2023 and passed by the House in March 2024, so we are now seeking Senate passage.
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