Cure SMA

Cure SMA Advocacy Letters & Statements

Action Alert

2026

01/27/26: Cure SMA and other National Organizations to Comment on DOT Accessible Air Travel Reporting Requirements

01/23/26: Cure SMA joins 180 Organizations in Support of Extending FDA Rare Disease Voucher Program

01/22/26: Cure SMA Supports Medical Research Investments in the Consolidated Appropriations Act of 2026

01/12/26: Cure SMA Urges State Medicaid Agencies to Protect Medicaid Coverage for People with Spinal Muscular Atrophy

Archived Cure SMA Advocacy Letters and Statements

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