Many people with spinal muscular atrophy (SMA) and their families rely on caregiving services provided through Medicaid to help with daily living activities. As one adult with SMA shared, "Without caregivers and Medicaid caregiving hours, I would not be able to live independently or be successfully employed.” 

A recent Cure SMA report documented the challenges individuals with SMA face in accessing Medicaid caregiving services, from difficulties finding qualified caregivers to not receiving the number of caregiving hours needed to live independently. People with SMA are deeply concerned about how recent federal changes to Medicaid may affect their ability to fully access Medicaid caregiving and other essential healthcare services. 

Reach out to your Members of Congress and ask them to ensure that people with SMA and their families are not harmed by state implementation of Medicaid changes.

Contact your Members of Congress Today!

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