CONCERNS AROUND CHANGES TO MEDICAID PROGRAMOn May 22, 2025, the U.S. House passed a sweeping budget package that includes significant changes to Medicaid. The Huntington’s Disease Society of America...
HDSA signed a letter to President Trump asking the administration to support policy goals to create efficient, affordable, and high-quality healthcare for Rare Diseases. Read the letter here.
If you or a family member take or have taken Austedo, use this HDSA Resource Guide to learn how to submit your experience with Austedo to the Centers for Medicare and Medicaid Services.
Thank you for advocating for your patients and their families by responding to the CMS IRA Information Collection Request around the price negotiations for Austedo. You can download a resource with...
HDSA signed a letter objecting to a CMS proposal to lower the laboratory reimbursement rates for complex tests. This policy could have the adverse effect of labs refusing to offer bio marker...
Think Differently Database Act (H.R. 670 / S. 4174) would require the U.S. Department of Health and Human Services to create an online clearinghouse of state caregiving services and programs...