We are calling on you to help ensure that members of Congress hear directly from the Huntington’s disease (HD) community. This is a critical moment—there are promising therapies in development, and your voice can help move them forward. We are asking you to email your Senators and Representative.

Why this matters:
Huntington’s disease is a fatal, inherited brain disorder with no treatments that slow or stop its progression. But for the first time, there is real hope. Multiple potential therapies are in the pipeline, and we must ensure that unnecessary delays do not stand in the way of patients accessing them.

Take Action Today

We have made it easy for you to send an email to your Senators and Representatives.

1. Enter your contact information in the box.
2. Select Send Message.
3. An email with your signature will automatically be sent to your Senators and Representative.

Every call and every email makes a difference. Policymakers need to hear the urgency of this moment directly from the people it impacts most. 

Thank you for taking action and for your continued advocacy.