Ask Your Representative to Support HD Research.

We need your help taking action to protect the future of Huntington’s disease research.

HDSA is asking advocates to contact their Members of the U.S. House of Representatives and urge them to co-sponsor the bipartisan Congressional Review Act resolution led by Representatives Jake Auchincloss and Brian Fitzpatrick regarding the proposed “Regulation for Federal Financial Assistance.”

The proposed rule would fundamentally change how federal research funding is awarded and managed. Among other provisions, it would give political appointees significantly greater authority over federal grants, including the ability to review funding decisions based on whether research aligns with Administration priorities. It would also diminish the role of independent scientific and peer review in determining which research deserves federal support. This proposed rule could give political appointees greater influence over federal research funding decisions and undermine the independent, scientific peer-review process that determines which research projects receive federal support.

Your voice matters. Members of Congress need to hear directly from their constituents about why protecting independent scientific research is so important to families affected by HD.