Logo
Action Center
Sign-Up Current Issues Action Center Your Officials Advocacy Institute Advocacy Blog
Access to Care
Action Alert
Access Banner Image

Early detection and intervention of neuromuscular diseases is critical in order to deliver adequate and appropriate healthcare. MDA advocates for access to healthcare and other services from the moment a baby is born and throughout the life of someone living with neuromuscular disease.

Newborn Screening

  • Improving and strengthening newborn screening by reauthorizing the newborn screening program and continuing to protect it from changes that may impede future research going forward.
  • Increasing the number of states that screen babies for both spinal muscular atrophy (SMA) and Pompe disease and working to gather the information necessary to add Duchenne muscular dystrophy (DMD) to the national list of newborn screening conditions.

Increase access to health care

    Subject
    Message Body
    Post
    Suggested Message
    Post
    Remaining: 0
  • Hide
    • Please call this number:

      Please do not close this window. You will need to come back to this window to enter your code.
      We just sent an email to ... containing a verification code.

      If you do not see the email within the next five minutes, please ensure you entered the correct email address and check your spam/junk mail folder.
      Enter Your Info