Big news! Key committees in Congress have released a Fiscal Year (FY) 2026 Consolidated Appropriations bill – and it includes many top priorities for the neuromuscular disease community!A vote on this bill is imminent, and your members of Congress need to hear from you...

The Rare Pediatric Disease Priority Review Voucher program is one of the most important incentives for biopharmaceutical companies to develop new and life-changing treatments for pediatric neuromuscular diseases. This incentive, while continuing along in limited capacity,...

Right now, the neuromuscular community across the country that utilize the Affordable Care Act (ACA) are very worried about losing their health insurance.Those in the ACA marketplaces are staring at massive health insurance premium increases – as high as double or triple...

MDA is uplifting the importance of caregivers in the neuromuscular community. As part of its efforts to support caregivers, MDA advocates for addressing the common challenges that caregivers face...

Do you utilize the Affordable Care Act (ACA) Marketplace to obtain health care? When you received your new premium for 2026, did it rise?  As we work to advocate for permanent extension of...

Thank you for taking the time to share your air travel experience with MDA Advocacy.We know air travel can be very difficult for people living with a disability. That is why we are collecting stories...

Grassroots advocacy is more powerful than ever, thanks to a wide variety of technology options and the ability to connect with advocates from across the globe or just down the street. In this toolkit, we will delve into the fundamentals of grassroots advocacy and equip you...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

We know you get a lot of emails and only want to receive messages that you care about. Therefore, please let us know what you're interested in.Take our survey today. Once you're done, click the...