Logo
Action Center
Sign-Up Current Issues Action Center Your Officials Advocacy Institute Advocacy Blog
Webinar: Rare Disease Policy
February 25, 2021 by Mark Fisher

In recognition of Rare Disease Day, watch a special edition of the Advocacy Institute about policies that affect those living with rare diseases featuring MDA experts and Rachel Sher, Vice President of Policy and Regulatory Affairs at the National Organization for Rare Disorders. This important conversation will touch on newborn screening, therapeutic development, access to the COVID-19 vaccine, and other policies that affect those living with rare diseases. Plus, we'll show you how you can make your voice heard.

Watch the webinar below. 

235
Please do not close this window. You will need to come back to this window to enter your code.
We just sent an email to ... containing a verification code.

If you do not see the email within the next five minutes, please ensure you entered the correct email address and check your spam/junk mail folder.
Share with Friends
Or copy the link below to share this blog post on your personal website
http://www.votervoice.net/Shares/BAAAAAA_ANrmAAQfy4e7FAA