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Webinar: Rare Disease Policy
February 25, 2021 by Mark Fisher

In recognition of Rare Disease Day, watch a special edition of the Advocacy Institute about policies that affect those living with rare diseases featuring MDA experts and Rachel Sher, Vice President of Policy and Regulatory Affairs at the National Organization for Rare Disorders. This important conversation will touch on newborn screening, therapeutic development, access to the COVID-19 vaccine, and other policies that affect those living with rare diseases. Plus, we'll show you how you can make your voice heard.

Watch the webinar below. 

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