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What You Can Do Before 2022 Ends
December 12, 2022 by Mark Fisher

It’s crunch time! With Congress set to go home for the holidays in a couple of weeks, time is running out to pass bills that are crucial for the neuromuscular community. With your help, we can still achieve important legislative victories before lawmakers leave Washington, D.C., including supporting the following three bills:

  1. FDA and Clinical Trial Reforms –Modernizes clinical trials and will speed up the development of important neuromuscular therapies.
  2. The ABLE Age Adjustment Act -  Allows more people to establish an ABLE savings account by increasing the age by which an individual must have established a qualifying disability from 26 to 46.This bill is currently included in the end-of-year spending bill, and it's vital it passes this week!
  3. The SSI Savings Penalty Elimination Act  - Improves SSI benefits by increasing the asset limit to $10,000 for individuals and $20,000 per couple and adjusts these numbers to inflation. Although we are disappointed the bill wasn't included in the end of year spending bill, it's important to urge Congress to make this a priority in 2023!

Members of Congress need to hear your voice! Below are the ways you can help us gain support for these three bills.

The ABLE Age Adjustment Act and SSI Savings Penalty Elimination Act

  1. Email your lawmakers urging them to support these two bills. You can do that via our website. 
  2. Follow-up your emails by calling your members of Congress. Not sure where to start? Use our easy call guide!

FDA and Clinical Reforms

  1. Email your lawmakers urging them to pass key FDA and Clinical Trial reforms. You can do that via our website.
  2. Follow-up your email by calling your members of Congress. Not sure where to start? Use our easy call guide!

Time is running out but together we can achieve these crucial legislative victories before Congress leaves for the year! Your voice is critical. Your voice matters!

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