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ALS Patients Deserve High-Quality Care

The Centers for Disease Control and Prevention (CDC) reports that over 30,000 Americans are currently living with ALS, and an average of 5,000 new patients are diagnosed every year with this disease. To manage symptoms and ultimately obtain the best possible quality of life, those living with ALS need access to high-quality, multidisciplinary care to manage their diagnosis.

That’s why we need your support for the ALS Better Care Act (H.R.5663 / S.3258), a bipartisan initiative led by Representatives Brian Fitzpatrick (R-PA) and Jan Schakowsky (D-IL), along with Senators Chris Coons (D-DE) and Lisa Murkowski (R-AK) to improve the lives of those living with ALS by providing coverage of ALS-related services under Medicare. These are services such as: physical, speech, and occupational therapy, genetic counseling, and mental health services, among many others.

By better reimbursing multidisciplinary care, there will be several benefits to those living with ALS:   

Reducing the financial and travel burdens of obtaining care for those with ALS.
Frees up resources for clinics, allowing them to focus on delivering more and higher-quality care.
Better funding allows better access to ALS clinical trials, providing more opportunities to participate in research.


We know that access to expert care is one of the most important ways that we can ensure those living with ALS get the care they deserve. This bill helps make better access to high-quality care a reality.

Take action and share our campaign to boost access to high-quality, multidisciplinary ALS care with your friends, family, and colleagues.

Join the fight for better ALS care today!

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