
Biomedical research is under threat. Over the past couple of months, we have seen new directives and actions from the current Administration that threaten to halt progress in finding new therapies and potential cures for neuromuscular conditions. These threats include:
- The National Institutes of Health (NIH) recently announced a major reduction in funding indirect costs in grants, which would have a catastrophic impact on research, especially in the neuromuscular disease field.
- A proposed budget that would cut NIH research by over 40%, an unprecedented cut to our research ecosystem.
- Impediments to grant funding reaching recipients, including total bans on certain institutions and various additional limits to funding
- Reduction-in-force that cut critical staff for planning, communications, policy, and more
- And further actions
Taken together, these delays and cuts would be disastrous for biomedical research. If fully implemented, current research will stop, clinical trials will shut down, and research staff will be let go. As we sit on the cusp of genetic medicine breakthroughs for many neuromuscular diseases, these cuts are all the more unacceptable.
Tell your members of Congress to oppose these cuts now!