Since 1975, the Individuals with Disabilities Education Act (IDEA) has promised students with disabilities – including members of the neuromuscular disease community – access to a free and appropriate public education (FAPE). However, today, the federal government contributes less than 15% of the costs related to educating students with disabilities, far below the 40% promised in 1975.

To address this shortfall, Congressmen Don Bacon (R-NE) and Jared Huffman (D-CA), along with Senator Chris Van Hollen (D-MD), introduced the IDEA Full Funding Act (S.1277/ H.R. 2598) to ensure that schools have the resources they need to support all students with disabilities, including those living with neuromuscular diseases. For the neuromuscular community, these resources are vital to obtaining individualized education programs (IEPs), classroom accommodations, and much more. 

Join us in urging Congress to cosponsor and pass the IDEA Full Funding Act! You can share your experiences and urge Congress to pass this bill and support students with disabilities by sending a letter today.