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Congress: Support Increased Access to Genetic Medicine

Limited access to crucial testing. Finding a genetic specialist. Confusion about costs. These are just a few of the hurdles the neuromuscular community face while trying to obtain a diagnosis and care via genetic testing, counseling, and specialists. And it’s also why it’s important our lawmakers support the following bills that will remove these barriers to help increase access to these vital services.

  • Ending the Diagnostic Odyssey Act (S. 2022) - Increases access to genetic testing and services in states with expanded Medicaid programs.
  • Access to Genetic Counselor Services (HR 2144 / S 1450) - Mandates Medicare coverage of genetic counseling services and expands access in both in-person and telehealth settings.
  • Accelerating Kids’ Access to Care Act (S. 1544) - Makes it easier to access genetic services across states lines in the Medicaid program.
  • Precision Medicine for Kids Today Act (HR 5989) - Mandates that states provide technical and educational assistance to increase the frequency of coverage for genetic or genomic testing

Urge your lawmakers to support these bills today!

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