As Congress considers potential Medicaid reforms that will jeopardize the neuromuscular community’s access to critically important care and benefits, MDA Advocacy needs you to share your experiences about why Medicaid is vital to the neuromuscular disease community and broader disability community. Your stories will help Congress understand how certain reforms may prevent our community from accessing treatment, at-home care assistance, medical equipment and services, and the medication they need to live healthy lives. Add as much detail as you would like to the following questions so that we can share real stories with key decision-makers in Congress. We will never share your personal or identifying information without your permission. We will always contact you before sharing any information that you provide.
Do you currently receive Medicaid?
How long have you been (or were) you on Medicaid?
What services do you use Medicaid for? (Check all that apply)
If you selected other, please describe what services you use Medicaid for.
Have you experienced any difficulties accessing care through Medicaid?
If yes, what challenges have you faced? (Check all that apply)
If you selected other, please describe the challenges you have faced with Medicaid:
Have you experienced any loss or disruption of your Medicaid coverage at any time?
If yes, do you know why your coverage was disrupted or lost?
If you lost coverage through Medicaid, how would it personally impact your access to care and day-to-day life?
What would you like policymakers to understand about the importance of Medicaid for people living with neuromuscular diseases?
Would you be willing to share your story publicly to support MDA advocacy outreach to policymakers?
