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June 17, 2021 by Mark Fisher
Patient Groups Praise Supreme Court Ruling Upholding Health Care Law, Preserving Critical Patient Protections Justices Throws Out Case Citing Lack of Standing by PlaintiffsWashington, D.C...
June 2, 2021 by Mark Fisher
Big news and we mean BIG. This week, Texas added spinal muscular atrophy (SMA) to its newborn screening program. That means the Lone Star State joins 32 other states who screen all babies for...
May 25, 2021 by Mark Fisher
ALS Organizations Double Down on Their Support for Reintroduced Legislation That Will Accelerate Research and Encourage Access to Critical Investigational Therapies for Those Living with ALS...
May 7, 2021 by Mark Fisher
It’s time. After years of connecting you to your lawmakers in order to raise your voice on our website, it was time for a refresh. We’ve worked hard over the past few months, and we're proud to...
April 22, 2021 by Mark Fisher
Although you might not be traveling by air due to the COVID-19 pandemic, hopefully all of us can hit the skies again soon. When that happens, MDA wants to make sure air travel will be as accessible...
February 25, 2021 by Mark Fisher
In recognition of Rare Disease Day, watch a special edition of the Advocacy Institute about policies that affect those living with rare diseases featuring MDA experts and Rachel Sher, Vice President...
February 2, 2021 by Mark Fisher
2021 is a new year: The country has a new administration, and a new Congress has been sworn in. What isn’t new is MDA’s commitment to working tirelessly in Washington, DC, to transform the lives of...