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Access to Care
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Early detection and intervention of neuromuscular diseases is critical in order to deliver adequate and appropriate healthcare. MDA advocates for access to healthcare and other services from the moment a baby is born and throughout the life of someone living with neuromuscular disease.

Newborn Screening

  • Improving and strengthening newborn screening by reauthorizing the newborn screening program and continuing to protect it from changes that may impede future research going forward.
  • Increasing the number of states that screen babies for both spinal muscular atrophy (SMA) and Pompe disease and working to gather the information necessary to add Duchenne muscular dystrophy (DMD) to the national list of newborn screening conditions.

Increase access to health care

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