Seizure Safe Schools legislation has been introduced in New York (Senate Bill S7445), which would significantly improve the care of students with epilepsy and seizure disorders. Your elected officials need to hear from YOU. Urge them to support this critical legislation and...

In early April, Reductions in Force (RIF) notices were issued to staff within the Centers for Disease Control and Prevention (CDC)’s National Center for Chronic Disease Prevention and Health Promotion Epilepsy Program. This comes as part of a massive RIF at the U.S...

In the United States, over 70 million low-income individuals, people with disabilities, seniors, families, and pregnant women rely on Medicaid to access health care coverage and long-term services and supports. Medicaid serves as a vital lifeline for millions of working...

The House of Representatives and Senate recently launched bipartisan Congressional Epilepsy Caucuses. Representatives Greg Murphy, MD (R-NC-03) and Jim Costa (D-CA-21) launched the House Epilepsy Caucus in February 2023 and Senators Amy...

What is a National Plan for Epilepsy and What Would It Do? The Epilepsy Caucus Co-chairs, Senators Eric Schmitt (R-MO) & Amy Klobuchar (D-MN) and Representatives Jim Costa (D-CA-21) & Greg Murphy, MD (R-NC-03), recently...

In the final Fiscal Year 2025 funding bill that Congress passed back in March, appropriations for the Department of Defense (DOD)’s Congressionally Directed Medical Research Program (CDMRP) were cut by 57%. This has completely eliminated specific funding for research...

The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) was terminated in early April 2025. For more than 20 years, this committee has governed the Recommended Uniform Screening Panel (RUSP), which helps to ensure that there is access to newborn...

The National Institutes of Health (NIH) is facing staffing and funding cuts that will impede research to better understand, diagnose, treat, and ultimately cure epilepsy. In late March 2025, as part of the Reduction in Force (RIF) at the U.S. Department of Health and Human...

The U.S. Department of Education (the “Department”) is in imminent danger of being weakened and dismantled by proposed Executive Orders, staffing reductions, and legislation in Congress. In March 2025, the Department lost about half its workforce through early...