On May 22, 2025, the U.S. House passed a sweeping budget package that includes significant changes to Medicaid. The Huntington’s Disease Society of America has concerns about how these changes will affect access to care for people living with Huntington’s disease (HD) and...

Your Voice Matters: Set Up a Meeting with Congress Now.Join the HDSA community as we meet with members of Congress to inform them about the challenges of living with Huntington's disease and current legislation that can improve the lives of everyone affected by HD and their...

Medicaid provides important access to care for many Huntington’s disease families. As Congress considers cuts to the U.S. budget, it is vital that we share with members of Congress how Medicaid...

Patient advocacy plays a key role in bringing about systemic change in the development and approval of medical products. Ideally, patient engagement involves more than participation in clinical trials. It means active participation in providing input into...