Many individuals with spinal muscular atrophy (SMA) and their families rely on Medicaid-funded home care to maintain their health, independence, and ability to live in their communities. This includes services provided through self-directed care and paid family caregiving—options that are often essential to meeting the complex and daily needs of people with SMA.

Medicaid home care is not optional or wasteful. It enables individuals with SMA to attend school, work, and avoid more costly institutional care. As one adult with SMA shared, "Home care allows me to work and be a taxpaying citizen."

Help educate lawmakers about why Medicaid home care, including self-directed care and paid family caregiving, is necessary, accountable, and essential.

Contact Your Members of Congress Today!

INSTRUCTIONS: when you enter your address information, and click on the "send message" button, the prewritten message will automatically be emailed to your Members of Congress. No other action is required, but we do encourage you to personalize further with your own experience by clicking inside the message. Contact advocacy@curesma.org with any questions.