Many individuals with spinal muscular atrophy (SMA) and their families rely on Medicaid-funded home care to maintain their health, independence, and ability to live in their communities. This includes services provided through self-directed care and paid family caregiving—options that are often essential to meeting the complex and daily needs of people with SMA.

Medicaid home care is not optional or wasteful. It enables individuals with SMA to attend school, work, and avoid more costly institutional care. As one adult with SMA shared, "Home care allows me to work and be a taxpaying citizen."

Help educate lawmakers on why Medicaid home and community-based services —  including self-directed care and paid family caregiving — are  necessary, accountable, and essential for people with SMA. Tell them why the Department of Justice's recent Olmstead interpretation is concerning for people with SMA who rely on receiving these services in their home and community. 

Contact Your Members of Congress Today!

INSTRUCTIONS: when you enter your address information and click "Send Message," the prewritten message will automatically be emailed to your Members of Congress. No other action is required. However, we encourage you to personalize the message by clicking inside the prewritten message to describe your own connection to the issue, which Cure SMA may use for future advocacy purposes. Contact advocacy@curesma.org if you have any questions.