Decisions about SMA treatment should be made solely by individuals with SMA and their family, in consultation with their healthcare providers. Unfortunately, some health insurance plans include barriers, such as prior authorizations or step therapy (also known as step...

Many individuals with SMA and other disabilities rely on the Supplemental Security Income (SSI) Program to meet their basic living needs such as food, clothing, and shelter. In many states, individuals enrolled in SSI are also automatically eligible for Medicaid and its...

Federal research is critical to addressing the unmet needs of people living with spinal muscular atrophy (SMA) — particularly older children and adults who lost significant muscle strength and motor function before accessing an existing treatment. New research...

Many individuals with spinal muscular atrophy (SMA) and their families rely on Medicaid-funded home care to maintain their health, independence, and ability to live in their communities. This includes services provided through self-directed care and paid family...

Many individuals with disabilities, including those living with SMA, struggle to find accessible housing that they can afford. While there are public accessible housing programs, there is often insufficient supply of rental vouchers. Working adults with SMA and other...

Natural disasters such as hurricanes, fires, tornadoes, and floods are increasingly disrupting the lives and livelihoods of Americans. A short- or long-term out-of-state relocation due to a natural disaster or other emergency can create unique challenges for...