Due to irreversible SMA-related symptoms, individuals with spinal muscular atrophy (SMA) face chronic challenges that complicate their health and limit independence and community participation. People with SMA and their caregivers are seeking new treatments that can regenerate nerves, reverse muscle loss, restore motor function, and address other unmet needs. 

Achieving these goals will require new federal research investments.

Thanks to your past advocacy, Congress named SMA as a research priority in fiscal year (FY) 2026.  However, research breakthroughs require sustained prioritization and multi-year funding. Your voice is needed to ensure Congress maintains SMA as a priority in FY 2027 and beyond.

Ask your Members of Congress to support SMA research in their FY 2027 request letters to the U.S. House and U.S. Senate Appropriations Committees.

Act Now

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