In September, 2025, 150 SMA community members from across the country were in Washington, DC to advocate for policies and investments important to children and adults with spinal muscular atrophy (SMA).
This group of individuals with SMA and their families asked their Members of Congress to support:
- New federal research in SMA to address the unmet needs of children and adults with SMA; and
- Bipartisan legislation (H.R. 2540; S. 1234) to promote financial independence for people with disabilities and end a key disability marriage penalty.
Will you help amplify this SMA community effort by advocating for these priorities with your own Members of Congress?
ACT NOW!
INSTRUCTIONS: when you enter your address information, and click on the "send message" button, the prewritten message will automatically be emailed to your Members of Congress. No other action is required. However, you can click inside the prewritten message to tailor it with your own connection to the issue, which Cure SMA may use for other advocacy purposes. Contact advocacy@curesma.org with any questions.