Federal research is critical to addressing the unmet needs of people living with spinal muscular atrophy (SMA) — particularly older children and adults who lost significant muscle strength and motor function before accessing an existing treatment. 

New research investment is needed to advance promising approaches focused on regenerating nerves, reversing muscle loss, and restoring motor function.

Thanks to your past advocacy, Congress prioritized SMA research in this year's budget. But breakthroughs don't happen overnight, they require sustained prioritization and multi-year funding.

Congress is actively working to determine research priorities and funding levels for fiscal year (FY) 2027, and those decisions are being made in the coming weeks. Your voice can make the difference in whether SMA remains a priority.

Urge your Members of Congress to support SMA research in the FY 2027.

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