New federal research into spinal muscular atrophy (SMA) is crucial in addressing SMA-related health complications and independence barriers faced by children and adults with SMA.  

Past federal research has led to SMA treatment breakthroughs and a better understanding of SMA and its impact on muscles and the nervous system. New federal investments are needed now to advance promising research ideas that will reverse SMA symptoms and restore muscle and motor function. 

Thanks to SMA community advocacy, there are provisions in draft U.S. House and U.S. Senate 2026 funding bills that would prioritize new SMA at the National Institutes of Health and a research program at the U.S. Department of Defense. 

Ask your Members of Congress to support SMA research by ensuring these two provisions are retained in the final fiscal year 2026 funding bill. 

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