Action Center

Support New SMA Research at the National Institutes of Health

Despite the availability of disease-modifying SMA treatments, individuals with SMA continue to face everyday challenges such as muscle weakness, fatigue, severe scoliosis, and joint contractures. The SMA community is united in seeking additional treatments to help address the significant unmet need that exists across all ages and disease stages of SMA. 

Past research at the National Institutes of Health (NIH) has led to existing SMA discoveries. It is critical that NIH continues its research and investments in SMA to meet the needs of children and adults with SMA.  

Tell Congress to support the needs of the SMA community by continuing SMA research at the NIH. 

Act Now

INSTRUCTIONS: when you enter your address information, and click on the "send message" button, the prewritten message will automatically be emailed to your Members of Congress. No other action is required. However, you can click inside the prewritten message to tailor it with your own connection to the issue, which Cure SMA may use for other advocacy purposes. Contact advocacy@curesma.org if you have any questions.

    Message Body
    Suggested Message
    Remaining: 0
  • Hide
    • Please call this number:

      Please do not close this window. You will need to come back to this window to enter your code.
      We just sent an email to ... containing a verification code.

      If you do not see the email within the next five minutes, please ensure you entered the correct email address and check your spam/junk mail folder.
      Enter Your Info
      Your Information
      By providing your mobile number, you agree to receive text messages from Cure SMA. Message and data rates may apply. Message frequency varies.
      What is your connection to SMA?
      What advocacy issues are you interested in?
      Home Information

      Enter Your Info