We know that many individuals with a neuromuscular disease face numerous hurdles while trying to gain better financial independence. From an outdated Supplemental Security Income system that disincentivizes employment to restrictions on setting up valuable savings accounts,...

Limited access to crucial testing. Finding a genetic specialist. Confusion about costs. These are just a few of the hurdles the neuromuscular community face while trying to obtain a diagnosis and care via genetic testing, counseling, and specialists. And it’s also why it’s...

Navigating long wait lists. Financial barriers. Lack of personal care attendants. Those are just a few of the many issues people who have a neuromuscular disease face when trying to access home-based care. And it’s why it’s vital Congress invests in the following bills...

Did you know that 12,000 babies are born each year with a condition, such as SMA and Pompe, that would have gone undetected if not for the Newborn Screening Program? Newborn screening is the most effective way to spot diseases early, so babies can receive the life changing...

According to an MDA survey, 70% of travelers with neuromuscular conditions have experience problems with accessibility when traveling by air. This is unacceptable. That is why we need members of Congress to support the Air Carrier Access Amendments Act (ACAAA), which...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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