November is National Family Caregivers Month, and MDA is uplifting the importance of family caregivers in the neuromuscular community. As many caregivers know, caregiving is a deeply personal...

Do you utilize the Affordable Care Act (ACA) Marketplace to obtain health care? When you received your new premium for 2026, did it rise?  As we work to advocate for permanent extension of...

Congress is currently considering approaches to fund the National Institutes of Health (NIH) and secure medical research funding for the neuromuscular disease research ecosystem.Please contact your Congressmembers and urge them to support strong medical research funding...

Thank you for taking the time to share your air travel experience with MDA Advocacy.We know air travel can be very difficult for people living with a disability. That is why we are collecting stories...

Since 1975, the Individuals with Disabilities Education Act (IDEA) has promised students with disabilities – including members of the neuromuscular disease community – access to a free and appropriate public education (FAPE). However, today, the federal government...

Are you a member of the neuromuscular community passionate about strengthening access to education for students with disabilities? If so, MDA wants to hear from you! We are advocating for policies...

In 2024, grassroots advocacy is more powerful than ever, thanks to a wide variety of technology options and the ability to connect with advocates from across the globe or just down the street. In this toolkit, we will delve into the fundamentals of grassroots advocacy and...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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