Unfortunately, many members of the neuromuscular disease community face challenges when seeking and maintaining employment. That’s why it’s important Congress passes laws to ensure those living with a disability get a fair shot at earning a living. There are two bills...

People with neuromuscular disease, including ALS, have waiting too long for promising therapies. The ACT for ALS would go a long way in changing this reality by facilitating drug development and access for everyone living with a neuromuscular disease. Specifically, the ACT...

Did you know that 12,000 babies are born each year with a condition, such as SMA and Pompe, that would have gone undetected if not for the Newborn Screening Program? Newborn screening is the most effective way to spot diseases early, so babies can receive the life changing...

According to an MDA survey, 70% of travelers with neuromuscular conditions have experience problems with accessibility when traveling by air. This is unacceptable. That is why we need members of Congress to support the Air Carrier Access Amendments Act (ACAAA), which...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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