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Share Your Air Travel Story
Broken wheelchairs. Inaccessible seating. Hard to navigate aircraft. We know air travel can be very difficult for people living with a disability. That is why we are collecting stories from people...
Let's Increase Access to Genetic Counselors
Too many people living with a neuromuscular disease (NMD) have difficulty obtaining an accurate diagnosis. This “diagnostic odyssey” can take years or decades to resolve and leads to frustration and hardship for patients and their families who want answers and appropriate...
Urge Congress to Prohibit Ableism is Healthcare
Did you know that those living with a disability can face discrimination in accessing care and treatments solely because they have a disability? Unfortunately, that is the case through the use of a health measure called Quality-Adjusted Life Years or QALYs. QALYs can...
Congress: Make Air Travel Accessible
Broken wheelchairs. Broken bones. Broken plans. For too many living with a disability, traveling by air is a nightmare and improving the system is long overdue. The good news is decisionmakers in Congress are proposing meaningful reforms that will make air travel more...
MDA Advocacy Institute
We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...
Tell us what you're interested in!
We know you get a lot of emails and only want to receive messages that you care about. Therefore, please let us know what you're interested in.Take our survey today. Once you're done, click the...
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Blog Posts
August 31, 2023
MDA Condemns Continuing Insurance Coverage Denials of FDA-Approved Neuromuscular Disease Treatments
August 10, 2023
MDA Celebrates Newborn Screening Committee Vote on Duchenne Muscular Dystrophy
July 26, 2023
MDA Celebrates DOT Rule on Accessible Lavatories
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