Air travel should be safe, accessible, and dignified for everyone. However, people living with disabilities – including many in the neuromuscular disease community – continue to face dangerous and discriminatory barriers, from damaged and destroyed wheelchairs and mobility...

For those in the neuromuscular community, ensuring robust medical research is vital. Medical discoveries and breakthroughs made at the National Institutes of Health (NIH) lead to promising drugs and therapies that can truly empower people living with neuromuscular...

Family caregivers serve a vital role for many children and adults affected by neuromuscular diseases. Research breakthroughs are leading to longer lives for many conditions, but due to the progressive nature of neuromuscular diseases, many individuals will require support...

The Centers for Disease Control and Prevention (CDC) reports that over 30,000 people are currently living with ALS, and an average of 5,000 new patients are diagnosed with this disease every year. To manage symptoms and ultimately obtain the best possible quality of life,...

MDA is uplifting the importance of caregivers in the neuromuscular community. As part of its efforts to support caregivers, MDA advocates for addressing the common challenges that caregivers face...

Thank you for taking the time to share your air travel experience with MDA Advocacy.We know air travel can be very difficult for people living with a disability. That is why we are collecting stories...

Grassroots advocacy is more powerful than ever, thanks to a wide variety of technology options and the ability to connect with advocates from across the globe or just down the street. In this toolkit, we will delve into the fundamentals of grassroots advocacy and equip you...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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