ACT for ALS, a bill which will accelerate therapeutic development for all neurodegenerative  diseases, including ALS, passed Congress in 2021.But now the hard work begins!This law’s promise will only be realized if Congress fully funds it, thus ensuring promising...

Build Back Better (BBB). Reconciliation. Social infrastructure. All of these describe a very large piece of legislation the U.S. House passed in November, but the Senate is yet to address.Inside BBB, there are many parts that could benefit the NMD including:Improving and...

Broken wheelchairs. Inaccessible seating. Hard to navigate aircraft. We know air travel can be very difficult for people living with a disability. That is why we are collecting stories from people...

Unfortunately, many members of the neuromuscular disease community face challenges when seeking and maintaining employment. That’s why it’s important Congress passes laws to ensure those living with a disability get a fair shot at earning a living. There are two bills...

Did you know that 12,000 babies are born each year with a condition, such as SMA and Pompe, that would have gone undetected if not for the Newborn Screening Program? Newborn screening is the most effective way to spot diseases early, so babies can receive the life changing...

According to an MDA survey, 70% of travelers with neuromuscular conditions have experience problems with accessibility when traveling by air. This is unacceptable. That is why we need members of Congress to support the Air Carrier Access Amendments Act (ACAAA), which...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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