Congress is currently debating bills that could impact research funding and future drug development and, unfortunately, cuts are on the table. Specifically, funding for the National Institutes of Health (NIH) and Food and Drug Administration (FDA), two agencies key to the...

Since 1975, the Individuals with Disabilities Education Act (IDEA) has promised students with disabilities – including members of the neuromuscular disease community – access to a free and appropriate public education (FAPE). However, today, the federal government...

Are you a member of the neuromuscular community passionate about strengthening access to education for students with disabilities? If so, MDA wants to hear from you! We are advocating for policies...

As Congress considers potential Medicaid reforms that will jeopardize the neuromuscular community’s access to critically important care and benefits, MDA Advocacy needs you to share your experiences...

In 2024, grassroots advocacy is more powerful than ever, thanks to a wide variety of technology options and the ability to connect with advocates from across the globe or just down the street. In this toolkit, we will delve into the fundamentals of grassroots advocacy and...

Disability benefits (including Supplemental Security Income, or SSI) provide critical support for families affected by a neuromuscular disease. However, stringent and outdated rules around...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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