This month, 150 SMA community members from across the country will be on Capitol Hill to advocate for policies and investments important to children and adults with spinal muscular atrophy (SMA). This group of individuals with SMA and their families will be asking...

Cure SMA is focused on advancing the advocacy priorities of individuals with SMA and their families. However, we cannot do it without you - the SMA community. Your experiences, recommendations,...

Natural disasters such as hurricanes, fires, tornadoes, and floods are increasingly disrupting the lives and livelihoods of Americans. A short- or long-term out-of-state relocation due to a natural disaster or other emergency can create unique challenges for...

The Supplemental Security Income (SSI) Program is an economic lifeline for individuals with SMA and other disabilities in helping to meet basic living needs such as food, clothing, and shelter. However, the program penalizes individuals with disabilities enrolled in...